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Click Here to go to AASEP's comprehensive overview of Traumatic Brain Injury. For numerous other links related to this topic, refer to the variety of topics below.
- Excellent list - This list of classroom modifications and strategies may assist the student as he/she returns to school following an acquired injury to the brain.
- Related to residential life - Upon request, a paid student guide is provided to help establish paths and locate classrooms in the early days of the new semester. It is the responsibility of the student and her family to ensure that she has acquired training in mobility techniques by a professional mobility instructor prior to her arrival on campus...
- On college campus - The mission of the Disablility Support Service is to coordinate services that ensure individuals with disabilities equal access to University of Maryland College Park programs.
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- For spouses
- When a husband sustains a brain injury, the family's life is forever
changed. In the efforts to rehabilitate the survivor, the devastating
effect on the spouse is often overlooked.
- For spouses
- September 19, 1989, a date I will never forget, is the day my whole
life changed. I am the spouse of a severe brain-injury survivor. The
past eighteen months have been a time that is most difficult to put
into words. No one (except for another spouse) can fully understand the
pain, frustration, loneliness, isolation and exhaustion that I have
felt.
- Sexuality and brain injury
- Relationships are in progress when brain injury happens. We get
through the immediate crisis by default because of the many players in
the incomprehensible medical drama that is unfolding. We are all numb
temporarily. The brain-injured person seems protected by coma and post
traumatic amnesia.
- Survivor’s view
- It is called head injury, traumatic brain injury, and acquired brain
injury. But it all essentially means the same thing-- a person has
sustained an injury to his/her brain that may change his/her life
forever.
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- Advocacy defined
- Advocacy is a type of problem solving designed to protect personal,
and legal rights, and to insure a dignified existence. There are many
types of advocacy. For example, system advocacy, is useful for
changing "the system;" additionally, it is used to promote causes.
Legal advocacy is what lawyers are paid to do, and legislative
advocacy is designed to change laws.
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- Assessment scales
- Information on brain injury assessment and evaluation rating scales,
including the diability rating scale, glasgow coma scale, and rancho
los amigos.
- Assessment sites - A condensed list of assessment sites.
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- Good site for technology solutions
- Brain injury is a thief. Whether caused by stroke, cerebral aneurysm,
brain tumor, anoxia, apoxia, or other disease or trauma, it steals
freedom from all it touches. However freedoms lost to brain injury can
be regained, at least in part. You can do it, we can help - with
information, support, and (our specialty) assistive products.
- Good overview of sites
- Assistive technology can mean anything from simple devices such as
Post-it Notes to sophisticated computerized equipment, PDAs, computers,
reminder tools, and much more. Below are links to articles to help
start exploring possibilities.
- Brief explanation
- Assistive technology can sometimes be the key to a loved one's
independence, self-confidence and overall happiness. Assistive
Technology is any device, resource or service, which aids the patient
to improve any skill, which is hindering his/her functional ability.
These devices may vary from a simple hearing aid, to a more high tech
augmentative communication board as used in speech therapy.
- List of devices and distributors - A long and detailed list of devices, distributors of assistive devices, and resources related to TBI.
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- Selected topics - A moderately extensive list of videos related to TBI
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- Extensive list of articles - Articles related to TBI
- Selected books
- The internet's largest online traumatic brain injury bookstore. The
TBI Resource Guide - in association with Amazon.com - has compiled over
200 books specializing in the field of neurological injury, treatment
and outcome. You can browse the bookstore by keyword, alphabetically or
by category.
- Bibliographies up to 1998 - While dated may contain interesting topics for further research
- Extensive list on TBI resources - Journal articles, books, and other publications related to TBI
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- Overview of causes
- Brain injury is unpredictable in its consequences. Brain injury
affects who we are, the way we think, act, and feel. It can change
everything about us in a matter of seconds.
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- Symptoms
- After an impact to the head, a person with a brain injury can
experience a variety of symptoms but not necessarily all of the
following symptoms. This information is not intended to be a substitute
for medical advice or examination.
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- Good list
- The brain can receive several different types of injuries depending
on the type of force and amount of force that impacts the head. The
type of injury the brain receives may effect just one functional area
of the brain, various areas, or all areas of the brain.
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- Educator’s guide to the brain-
The brain, our brain, is quite elegantly the supreme organ of learning.
All that we do, all that we are, emanates from our brain. Yet, few
educators in their undergraduate or graduate work receive detailed
information on the brain and how the brain learns or what is happening
(or not happening) when the brain does not learn well.
- Memory process
- Improving one's memory after a brain injury seems to be a life-long
struggle. Books and audiotapes available on improving memory skills
most readily apply to the non-injured population, and the additional
steps involved only seem to make the memory process even more difficult.
- Case study
- At the Hospital Jimmy was seen by a team of pediatric specialists. He
was operated on to remove a large subdural hematoma. Jimmy was in the
PICU for 3 weeks until he began to regain consciousness. During that
time he was followed by neurosurgery, neurology and internal medicine.
He was evaluated by physical medicine and a core of rehabilitation
therapies were started to improve his range of motion, feeding and
swallowing, and his ability to attend and respond to his environment.
- Attention skills
- Attention skills are an important factor in the recovery from
traumatic brain injury for two reasons. First, attention disorders are
seen in the majority of traumatic brain injuries.
- Functional IEP’s
- The Individual Education Plan (IEP) is the driving force that
supports the entire educational program planning for students with
special needs. For the student, the IEP is the educational map we use
to guide what we do with the student. For the family members, the IEP
is the contract between the family and school for the delivery of
educational services to their child. As each student is different, each
IEP needs to be different to meet the unique needs of the student.
- Understanding inclusion
- Inclusion is the practice of educating students with disabilities in
"regular" education classrooms, classes which they would attend if they
did not have a disability. Special instruction is delivered by a
special education teacher within the classroom. This article will
attempt to clarify the issues surrounding inclusion, define terminology
associated with inclusion, and help the reader to understand several
placement options related to inclusion.
- Recovery strategy-back to school
- About a year after my brain injury, I was told to do something about
community re-entry. This meant finding a place to go where people
wouldn't notice my difficulties. I decided to attend a continuing
education certificate program in holistic health two nights a week for
one school year. My limp toes were admired as "so relaxed." I heard
people talking about a lot of interesting things. My silence was viewed
as composure. I couldn't study for the tests but I was assured that
tests were not used to eliminate people...
- Communicating needs to instructors and professionals
- I'm sitting in a huge, so it seems, classroom among many unfamiliar
faces. Everything is different, these people, surroundings, and
circumstances. I'm further away from the security I know, my home, from
the people I know. And now, further away from myself, since my brain
injury. But my dreams are still very close, I want to finish school.
- Victim’s perspective of school
- A few years after my injury, the Texas Rehabilitation Commission
agreed to give me a shot at returning to school. What they neglected to
do was assign a counselor to me that knew brain injury and was able to
be involved in the process. Instead, I was on my own with the clock
running. As horrible as it was, I can't imagine what it must be like
for someone who doesn't have some awareness of what they need or,
atleast, have someone available to help them figure it out.
- A model of TBI peer support-
The Traumatic Brain Injury Model System of Care at Santa Clara Valley
Medical Center in San Jose, California is providing a unique new peer
support service for individuals with a brain injury and their families,
based on the investigated needs of the community of individuals with a
traumatic brain injury (TBI) and their families.
- Adolescents with TBI
- Adolescence is a time of growth, freedom, adjustment, and,
unfortunately, injury. During adolescence the rate of traumatic brain
injury increases dramatically, with the number of severe injuries
sustained between ages 15 and 19 equal to all the previous 14 years
combined. Most traumatic brain injuries during adolescence are related
to motor vehicle accidents. This is the time when adolescents are
beginning to get their driver's licenses and are spending much of their
time "on the move."
- Helpful glossary of terms associated with TBI
- Terms in this section were drawn from Taber's Cyclopedic Medical
Dictionary, 14th edition, 1981, Mosby's Medical and Nursing Dictionary,
2nd edition, 1986, The Merck Manual, 13th edition, 1977, DSM-IV.
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- Brain injury glossary - The Brain Injury Glossarywas edited by L. Don Lehmkuhl, PhD, of the Texas Medical Center. Copyright 1992, by HDI Publishers.
- Excellent overview of brain injury-legal perspective
- Here at new york city personal injury lawyers are knowledgeable in a
wide range of personal injury cases and have numerous strategies to use
while representing you. State law usually governs personal injury
lawsuits but federal law under certain circumstances could apply. The
brainstem controls your eyes for one of specific drugs may cause
hallucinations and sleeping!
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- Diagnosis and management
- The in-hospital guidelines have been accepted by the American
Association of Neurological Surgeons (AANS), the first such protocols
ever accepted by the Association. These guidelines are also endorsed
by the World Health Organization's (WHO) Committee on Neurotraumatology.
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- Good selection of questions - What is an Acquired Brain Injury? Is it only an ABI if there has been coma? What are the symptoms of an ABI?...
- Head injury
- Ruth Hutchison, M.S. and Terry Hutchison, M.D., Ph.D., and The Texas
Head Injury Association State Chapter of the National Head Injury
Foundation, in collaboration with members of the Texas Head Injury
Association, provide the following answers to questions frequently
asked by head injured people, their families and friends, and
professionals.
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- Pharmacology guide
- Carbidopa/L-Dopa (Sinemet) | Levodopa (L-Dopa) | Bromocriptine
(Parlodel) Baclofen (Lioresal) | Dantrolene (Dantrium) | General
References...
- Excellent coverage
- Just as no two people are alike, no two brain injuries are alike.
Appropriate treatment and rehabilitation will vary from individual to
individual. Programs and treatments change, as a person's needs change.
It is important to recognize that "more therapy" does not make a person
"better", but that "appropriate" therapy may.
- Hypothermia treatment
- The University of Cincinnati Department of Neurosurgery is seeking
public input before it launches federally funded research aimed at
improving the odds that patients who suffer severe traumatic brain
injury will go on to live a normal life.
- Treatment protocol and mild TBI
- Review pain medications to avoid medications which can cause
dependence or rebound headache. Avoid over the counter medications that
contain caffeine such as Excedrin, Anacin. Gradually reduce caffeine
intake, in particular, for individuals with irritability or sleep
disruption...
- National Institutes of Health
- Although studies are relatively limited, available evidence supports
the use of certain cognitive and behavioral rehabilitation strategies
for individuals with TBI. This research needs to be replicated in
larger, more definitive clinical trials.
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- Brain Injury Association of America
- The Brain Injury Association of America was founded in 1980 by a
group of individuals who wanted to improve the quality of life for
their family members who had sustained brain injuries. Despite
phenomenal growth over the past two decades, the Association remains
committed to its grassroots. The Brain Injury Association of America
encompasses a national network of more than 40 chartered state
affiliates across the country, as well as hundreds of local chapters
and support groups.
- Good list of TBI resources - From AbleData systems.
- National and worldwide associations
- There are many, many organization sites out there including those of
various BIA State Chapters and Affiliates. However, we are only
including those sites that are actually hosted by the organization
itself and even then we are limiting inclusion to those who have
specific, pertinent and unique information available (more than just
membership information only. We apologize if this inconveniences
anyone.)
- Coma Recovery Association - CRA is a non-profit support organization for coma and brain injury survivors, family members, friends and professionals.
- International Brain Injury Association
- The International Brain Injury Association (IBIA) is dedicated to the
development and support of multidisciplinary medical and clinical
professionals, advocates, policy makers, consumers and others who work
to improve outcomes and opportunities for persons with brain injury.
- Brain Injury Society
- The Brain Injury Society is a federally-exempt 501(c)(3) corporation
committed to empowering persons living with conditions caused by a
brain injury. The organization works with clients, families and
caregivers to identify strategies and techniques to maximize the new
found potentials for a stronger recovery. In this way individuals
recovering from brain injuries are better able to lead active,
productive and meaningful lives while becoming as independent as
possible in a rarely given second chance.
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- Excellent overview
- Traumatic brain injury (TBI) is damage to the brain caused by an
external physical force. The damage may occur from the movement of the
brain within the skull or from penetration of an object into the skull,
contacting the brain directly. TBI can result in cognitive dysfunction,
physical impairment, or psychological disturbance.
- Children and adolescents with TBI
- It is called head injury, traumatic brain injury, and acquired brain
injury. But it all essentially means the same thing-- a person has
sustained an injury to his/her brain that may change his/her life
forever. In fact, the largest killer and disabler of our children is
not AIDS nor cancer, it is brain injuries. When one considers the
schoolage population of survivors, those survivors under age 21
outnumber all other ages combined (NHIF, 1994). Yet, children and
adolescents with brain injuries have not received the same recognition
nor services as have adults with brain injuries.
- The Perspective Network
- The Perspectives Network, Inc.'s primary focus is positive
communication between persons with brain injury, family members/
caregivers/friends of persons with brain injury, those many
professionals who treat persons with brain injury and community members
in order to create positive changes and enhance public awareness and
knowledge of acquired/traumatic brain injury.
- Good overview
- The number of children and adolescents in this country sustaining
traumatic brain injuries is staggering. Each year one million
youngsters are taken into emergency rooms with brain injuries resulting
from motor vehicle accidents, falls, sports, and abuse (National Head
Injury Foundation, Inc., 1992). Approximately 165,000 of these
children will be hospitalized, with 20,000 suffering moderate to severe
symptoms.
- Interesting overview
- Traumatic brain injury (TBI) is one of the leading causes of death
and lifelong disability in the United States today. According to
statistics from the Centers for Disease Control and Prevention (CDC),
out of the estimated 1.5 million yearly survivors of TBI in the United
States, approximately 90,000 are left with permanent disabilities. As a
result, more than 5 million people are living with TBI-related
disabilities. Men are affected 3 times as often as women, with the
leading causes of TBI being motor vehicle accidents (MVAs), falls, and
violence (CDC, 1999).
- General overview-
Traumatic brain injury (TBI) is damage to the brain caused by a blow to
the head. The severity of the injury may range from minor, with few or
no lasting consequences, to major, resulting in profound disability or
death.
- Legal overview
- The purpose of the Traumatic Brain Injury (TBI) Update is to inform
those lawyers interested in TBI cases about recent developments in the
neurobehavioural literature. The first Update (The Verdict,
December/94) reviewed the literature in the field of mild traumatic
brain injury (MTBI).
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- Roles of the family
- The role of the family in the rehabilitation process is paramount to
the child's continued recovery and changing needs. Professionals need
to recognize the omnipotent role that families have as "partners" in
the care of their children.
- Guidelines for parents
- Your child has sustained an injury to his/her brain. The brain
controls how we think and communicate, how we act and feel, and how we
move about our world. The following tips may help you guide your child
through the "confusion" that is common in the early stages of recovery.
- About siblings and peers
- Siblings and peers need to be part of the information loop concerning
their brother/sister/friend. The ideas that follow will help parents,
relatives, friends, and teachers enable the sibling or peers understand
TBI and the injury itself and provide continuity as their
brother/sister/friend recovers and returns home.
- Self esteem, empowerment and social action
- Those who have experienced "serious medicine" have seen that model in
action and experienced its effects on the mind and soul. It starts in
white coats (uniforms of intimidation?), is driven by a faux expertise
and believes that the worst thing that can happen is death. It steals
dignity from customers by calling them "patients." Remember that
Webster defines "patient" as: "one who is acted upon."
- Disability benefits
- If a brain injury has permanently or temporarily prevented you from
working, you may be eligible for Social Security disability benefits.
The time between applying for and receiving benefits, however, can be a
very lengthy one. By knowing what to expect from the application
process, you can spare yourself some of the frustration many
applicant's experience. You should also be aware of when you should
contact a lawyer to help you pursue disability benefits.
- Stress management
- We all know that caring for a TBI survivor is stressful. Many studies
have shown that TBI caregivers have very high levels of stress,
anxiety, and depression. At the same time, studies also show that due
to the isolating nature of being a caregiver, TBI caregivers have very
low levels of social support. This creates a situation which could be
detrimental to your health and also make it harder for you to be a
caregiver for your loved one.
- Sports and recreation resources - A nice list of sport and recreation resources for individuals suffering from traumatic brain injury.
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- Overview
- Head injury is the No. 1 killer and disabler of persons under the age
of 44. It is estimated that 55,000 Canadians incur a traumatic brain
injury each year. In Saskatchewan, about 2,500 people incur a head
injury each year. That's five persons injured a day!
- Charts and statistics
- On an annual basis in the United States: 1.5 million people will
sustain a TBI annually; 50,000 people will die annually as a result of
TBI...
- Facts and stats
- This Annual Incidence Comparisons Charts are now available for
download. To view full image please click on the thumbnail. To download
right click on the file name and choose file save as. Files are very
large, please allow time for download.
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- AASEP's comprehensive overview of 18 types of transition services
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