AICARDI SYNDROME

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  • Aicardi Syndrome (Aicardi-Goutieres syndrome):Overview page providing important information on this topic.
  • Aicardi Syndrome Foundation
  • Aicardi Syndrome medical information: This site provides information on definintion, causes, treatment, and much more.
  • Aicardi symptom summary list: This page provides a summary, list of synonyms, and the major features.
  • Aicardi Syndrome and inheritance problems: General information, including associated conditions, plus inheritance patterns.
  • Aicardi Syndrome awareness and support group and newsletter informtion
  • Support group for Aicardi families: Support for Aicardi families. This group is for families to discuss information concerning their children with Aicardi syndrome
  • Statistics on Aicardi Syndrome
  • Statistics by country on Aicardi Syndrome
  • Associated conditions of Aicardi syndrome
  • First hand article on Aicardi Syndrome and a second grade girl : For those of you who don't know my daughter Hannah very well, she is considered severly delayed in all areas. That phrase, however, sounds worse than it actually is. There are lots of things Hannah can do. They just aren't the kinds of skills people use to measure success. Read and see more. This article includes pictures
  • United Leukodystrophy Foundation: A wealth of informtion on these diseases including Aicardi Syndrome.